Monday, September 29, 2008
Thursday, September 18, 2008
Friday, September 12, 2008
Thursday, September 11, 2008
Wednesday, September 10, 2008
Tuesday, September 9, 2008
Fold two hands together
And express a dash of sorrow
Marinate it overnight
And work on it tomorrow
Chop one grudge in tiny pieces
Add several cups of love
Dredge with a large sized smile
Mix with the ingredients above
Dissolve the hate within you
By doing a good deed
Cut in and help your friend
If he should be in need
Stir in laughter, love, and kindness
From the heart it has to come
Toss with genuine forgiveness
And give your neighbor some
The amount of people served
Will depend on you
It can serve the whole wide world
If you really want it to
Monday, September 8, 2008
Thanks for the kind words. But, I was a bad girl and I know I said I wasn't going to post on the list serve but...............not the best of me came out Saturday. I am generally a "happy go lucky person" and I didn't mean to be "harsh". I just didn't want any WS family to have to go through seeing their child's heart broke. I also know that it was not done on purpose by anyone. It is human nature to think of yourself 1st. But, explaining that to a WS child was not the easiest task. "The Mother lecturer" just came out in me (having 6 kids in all)and I thought, "You know, why should people not be aware of what your actions can do to another person". Simple as that. I didn't post on the list serve to be cruel or get back at any of the families because I totally understand not wanting to drive hours just to find out the park is closed or it was raining too hard to ride the rides. Believe me, with Angelo's anxiety, I would of thought twice about coming. But I would have called. I posted my home number, cell phone number and email address. I thought I would get a call that morning from someone. Nothing. So, off we went to Knoebels. Again, I didn't want this to be a debated subject on the list serve. I just thought it should of been brought up. Kinda an etiquette 101. This is something that I don't want anyone to ever go through. So now I am totally off of this subject and am moving on. Angelo is doing so good except that he was up until 5am this morning before he decided to go to sleep. He had a full day at the football field and even got some rosy sunburned cheeks. I thought for sure he would knock off early or at lest by 9pm. Yikes! he was wound up like a top. I even gave him Melatonin (2 times) once at 11pm and then again at 3am and it didn't work. I feel asleep with him at 5am and woke up at around 7am. Wouldn't ya know it. He is still sleeping like a baby ZZZZZZZZZZZZZZ, the little skunk!
Saturday, September 6, 2008
9wslist mailing list };
Liz,We are about 2 1/2 hours away and due to the weather decided not to go. The weather here is supposed to be pretty severe.Cathy (Alexus WS-9)
Written not to me, but to someone else. I wanted to post a FYI to the list serve in manners on responding to an event and then deciding not to go. Decided to vent on the blogger instead. Sorry! I know I will feel different tomorrow or at lest off of my milk box. I am so disillusioned by this WSA group and people just in general.
Friday, September 5, 2008
Well, tomorrow is the Williams Syndrome Family get-together at Knoebels. Wouldn't you know, they say it is going to rain. Thank Goodness, that they have upgraded it to periods of rain. Which means it will shower off and on but when ???????? Dang it! Knoebels is only going to be open for 2 more weekends and their fall scheduling is still up in the air (The do some Halloween stuff). The Pavilions then would be 1st come situation. Soooooooooooooo...............My Family will be there, Rain or Shine. We do have a large covered Pavilion. During the rain we can still visit and enjoy he company. They said that unless it is high winds (so far 2 mile hr) the rides will still be going. I am so bumed out about this and there is no way that I can tell Angelo that it has been cancelled. He wakes up everyday and says "What's today"? "Is it Knoebels"? He tells strangers walking by our house that all "his" friends are going to be at Knoebels on Saturday. I hope that some people will brave it and show up. Angelo wanted me to do purple balloons on the tables. Wouldn't you know the big HS Football game is tonight and thier colors are purple and white. No purple balloons to be had in this community. I think I may have some in the attic, in some remote box. I keep everything! Because we homeschool, I always look at a milk container differently or scrapes of colored paper. My husband just shakes his head! LOL!!!! We picked up name tags but they do not come apart easy. I hate that! Hee, Hee, I think I may have some in the attic too! Well, I need to go make some cookies for a homeschool picnic. It is at a place called coon creek. Cute name. We are having a big bbq for all the local kids. The will get to collect stuff in the water and go fishing (only catch and release but still fun) and then off to the HS football game tonight. Tomorrow we have Knoebels (pray it turns out ok) and then Sunday is Jeno's 1st Football game. He is a guard and tackle. The whole Schicatano clan will be there for that! His cousin is cheer leading for the opposite team. Should be fun! Angelo gets to be the water boy. I will post photos on Monday! Have a glorious weekend! Maybe I will catch up with some of you tomorrow!
Thursday, September 4, 2008
I decided to go to my blog today and saw my last entry. Yikes! Where did August go? We have so many things happen in our family this month. Some great things and some very sorrowful things. 1st the Good!
Wednesday, July 30, 2008
Tuesday, July 29, 2008
Get out into his nature
If the heaven's declare... let's get out there!
Take a hand and go for a walk.
Slow down. Marvel.
Worship the Creator of all things.
Ideas to combat nature deficit disorder:
~ make Worship Walk dates with other families. After a good hike on a nature trail, gather together to sing hymns of praise around a campfire, or in a clearing...~ see nature walks as an antidote against stress and depression...
~ collect little stones on your walks and display them in a old mason jar set on a windowsill
~ play a game of "Find Ten Glimpses of Glory"... and walk through the woods looking for ten interesting leaves, or ten evidences of animals, or ten unusual plants, or ten flashes of color...~ lay out in the backyard and look up. Watch clouds float by. What shapes are His hand forming? Do you know the different kind of clouds? Print out this page to take out cloudspotting with you. Or watch this fascinating Cloud Tutorial
"For since the creation of the world His invisible attributes, His eternal power and divine nature, have been clearly seen, being understood through what has been made..." ~Romans
Monday, July 28, 2008
Sunday, July 27, 2008
Tell me if this is common in you home........
Angelo: Mom, where are you? (standing outside the door)
Me: In the bathroom...
Angelo: What are you doing?
Me: Needing a little privacy.
Angelo: Are you going potty?
Me: Yes, Angelo. Can you please go talk to your Dad or brothers?
Angelo: Mom, (pause) Can I come in?
Me: No, Angelo mommy is going potty. I would like some privacy.
Angelo: Mom, I just have a question........
Me: Yes, Angelo
Angelo: Hey, Mom what are you doing in there, anyway?
and it goes on........................everyday.......whether I am going potty or in the tub. So, funny.
And then if it isn't Angelo, I have a dog's paw under the door. You know they are thinking...I wonder what's she doing?
Well, I guess I will never, ever be lonely! I thank God for that!
Saturday, July 26, 2008
I have gotten to the point that I am afraid to add a comment. I am afraid I will be criticized or talked down to for any comment or suggestion.
All too sad............................................... Why?????
Friday, July 25, 2008
Thursday, July 17, 2008
Wait Desperately, helplessly, longingly, I cried Quietly, patiently, lovingly God replied. I pled and I wept for a clue to my fate, And the Master so gently said,"Child, you must wait"."Wait? You say, wait!" my indignant reply."Lord, I need answers, I need to know why!
Is Your hand shortened? Or have you not heard? By Faith, I have asked, and am claiming your Word. My future and all to which I can relate Hangs in the balance, and YOU tell me to WAIT? I'm needing a 'yes', a go-ahead sign, Or even a 'no' to which I can resign. And Lord, I've been asking, and this is my cry: I'm weary of asking! I need a reply!
"Then quietly, softly, I learned of my fate As my Master replied once again,"You must wait."So, I slumped in my chair, Defeated and taut and grumbled to God,"So, I'm waiting...for what?" He seemed, then, to kneel, And His eyes wept with mine, And He tenderly said,"I could give you a sign. I could shake the heavens, And darken the sun. I could raise the dead, and Cause mountains to run. All you seek, I could give, and pleased you would be.You would have what you want --But you wouldn't know Me.
You'd not know the depth of My love for each Saint; You'd not know the power that I give to the Faint; You'd not learn to see through the clouds of Despair; You'd not learn to trust just by knowing I'm There; You'd not know the joy of resting in Me When darkness and silence were all you could See. You'd never experience that fullness of Love As the peace of My Spirit descends like a Dove; You'd know that I give and I save...for a StartBut you'd not know the depth of the beat of My Heart. The glow of My comfort late into the Night, The faith the I give when you walk without Sight, The depth that's beyond getting just what you Asked Of an infinite God, who makes what you have LAST.
You'd never know, should your pain quickly Flee, What it means that "My grace is sufficient for Thee."Yes, your dreams for your loved one overnight would come True, But, Oh, the loss! If I lost what I'm doing in You!
So, be silent, My Child, and in time you will See That the greatest of gifts is to get to know Me. And though oft' may My answers seem terribly Late, My most precious answer of all is still, "Wait.'"
Monday, July 14, 2008
Thursday, July 10, 2008
Thursday, July 3, 2008
Now this is not out of the ordinary. Things around me have been going on for the past couple of weeks like this. A heard a woman yelling last week our back alley....I guess at her boyfriend. This was around 2 in the morn. That one was an eye opener!
Hey, I live in a nice neighborhood with nice quiet neighbors. So, I thought. Maybe it is just me but I am seeing a huge change in people. Thanks for hearing me vent!
Friday, June 27, 2008
Angelo and Jeno had tons of fun! We each had a basket and ended up with 4.5 quarts of strawberries. I will be making strawberry jam all weekend! Angelo and his Pap ate the last jar last week. I didn't realize how many we picked until I got home and started cleaning and measuring them. I have 10lbs of blueberries coming next week from a local farmer. I think I will save some and mix the blueberries and strawberries for jam. It was sooo hot! and humid while we were picking. Wouldn't you know...as soon as we were done it started to rain. LOL!!! It was so funny, every strawberry Angelo picked he had to show to me or his Dad for inspection. We were done with our baskets and he has maybe 20 perfect strawberries. I had to take him along and help him fill his basket. He informed me that he liked his strawberries much better than the ones I picked! Ohhhhh, the little skunk!
Tuesday, June 24, 2008
Saturday, June 21, 2008
Now.......on to Angelo. I will have to say he did very well at the hospital. He did a lot of rocking and I had to assure him that this was Jeno's Doctor Day! Not his! My only problem was that he was answering Jeno's questions. The doctor would ask Jeno if he got headaches and Angelo answered, "Almost every day"! I had to hush him a lot, but over all it went well at the hospital. I wish that was all I could say about his behavior. The last two days have been a nightmare. Every time I ask him to do something he says, "NO"! and then proceeds to do just what he wants to do! He is hitting and name calling. Yesterday I was called a freak 4 times, a human being?? 3times (doesn't make sense but he puts a lot of meaning into it), a meat eater 2 times (he is into dinosaurs), and yes the horrible "Bitch" 1 time. Did you notice the bitch was only once! LOL!!!! We were in Rite Aid and he wanted a water gun. He followed me around. I would put it as harassing me in the store to buy this gun. I kept telling him no. Well.....He turned around and said, "Man, you are such a Bitch"! Oh,my gosh! I went into shock! For one thing, we do not talk like this in our home. Nor do we watch TV that would reflect that kind of language for him to hear. My 24 year old would not even swear in front of me! It is just a respect thing! I know where it came from. "PLAYING WITH THE NEIGHBOR BOYS OUT BACK"
That is for a whole different bog! Well, I dropped what I was doing, I told him we never say that word, EVER! and he was marched out to the car (with Jeno sneaking behind like he wasn't with us) Angelo was yelling and screaming as I put him in his seat and strapped on the seat belt. I didn't say a word. I just proceeded to get in my seat and drive. I was sure someone thought I was kidnapping him.
This intense behavior has been going on for two days. That is why I was so surprised he was good at the hospital. I think he thought I was going to sneak a doc. visit on him. So, two fruit stands later ( had to get good fruit and veggies) and Angelo screaming all the way because I would not let him eat cherries and spit the seeds in the car, we finally got home. This went on and on until guess what saved me! The movie on the Disney Channel "Camp Rock" He has been waiting months to see it. At last I had some peace! I even recorded it for the future. I am so glad because he is watching it this morning.
Well, I am off to see what the day has to bring today! So far he is a little ray of sunshine. Hope to have a good and peaceful day. Ha! Ha!
Thursday, June 19, 2008
Angelo has all his appointments set up for CHOP. We will be there August 6th, 7th & 8th. Hope to get a lot of things resolved there too!
Wednesday, June 18, 2008
Tuesday, June 17, 2008
Sunday, June 8, 2008
Wednesday, June 4, 2008
Friday, May 30, 2008
Well, we just purchased a new baby boy. Baby boy puppy that is. Before we moved to Pa, I used to breed dachshunds. I kept three of my girls and I had to give up the rest because we were not sure how many I could have in a residential area. My good friend Doreen, in NY breeds also and one of her girls just had these puppies on Memorial Day. I was mid-wife via the phone. I just could not resist this little guy. He looks like he is going to be a cream dapple. We are all so excited! I cannot wait until the day we get to move back out in the country and I can have more. Right now I will have 3 girls and a boy and can have a little breeding going on. Not til next year! He is so just a baby! I will post updated photos. Right now he looks like a little bunny rabbit. He is only a couple hours old in this photo.
Thursday, May 29, 2008
Saturday, the kids went fishing with their Dad and Uncle Sibby. That is when Angelo caught his first fish! He was so excited. He wants to go everyday now! When they got home we went downtown to the festival and ate hot dogs and potato cakes. I also found a Christian Homeschool group! Yeah!!!! Can't wait. Too bad I found them at the end of the school year. But, it will be a good start for the new school year. That evening we went to a barbecue at friends. Great food!
Sunday we went to a Pig Roast. The whole family had a great time. So much food! The boys were playing all kinds of games and they had this big hill to roll down. Of course Angelo found himself two girls that took him under their wing! He was in his glory! On the way home we stopped to let the kids fish again. Such a beautiful area. I found all kinds of wild raspberry bushes. You know what I will be doing in mid summer while they are fishing. I can already taste the jam and ice cream. LOL!
Monday, we had a barbecue at our home. It was with close friends and we could just wind down and enjoy the day. We cooked up Jeno's monster fish and had chicken and hot dogs. The kids played outside with water guns and had a blast! Angelo loves to play hide and seek but he always tells people where he is......So funny!
I am taking this week to unwind Angelo before we go to Knobels this weekend for a b-party. Then the next weekend is the train with all his new WS buddies!! We are counting down the days. It is going to be a day to remember!
Monday, May 26, 2008
Friday, May 23, 2008
Thursday, May 22, 2008
Wednesday, May 21, 2008
Tuesday, May 20, 2008
Monday, May 19, 2008
Saturday, May 17, 2008
The excitement of the day was that Jeno caught the biggest fish at the derby. It was over 7lbs. Angelo was so happy for his brother. Jeno won a new fishing vest and a bunch of tackle. Lucky Boy! Looks like we are having Fish for supper tomorrow.
Friday, May 16, 2008
Thursday, May 15, 2008
On a brighter note, he is a little ray of sunshine today. My what sleep can do!
Just a FYI: Mr. Clean Magic Eraser does take out magic Marker. Angelo drew me a Masterpiece yesterday. hee hee Oh, he is a skunk! But I love him more than life itself.
Wednesday, May 14, 2008
Tuesday, May 13, 2008
You can look up this condition at http://www.williams-syndrome.org/ for further information.
I knew the moment he was born that there was a problem. Everyone had that "look" on their face. When they said 5lbs 13.8 ounces, I thought "Oh, no that can't be right" I have the big fat babies. My first son, Andrew was 9lbs 11 oz and Jeno followed in the same weight pattern. Jeno at 4 mos was 22lbs! So you can understand the surprise at this little peanut with a full head of white/blond hair. It stuck up and he looked like a little chick. That was the day our life changed.
Angelo's health has always been relatively good. We has the ear tubes (6 times) and he has pulmonary stenosis. Each year we wait for the heart operation but each year no change (Thank you, God)! Angelo is now 9 years old but is still around the kindergarten stage. His emotions change with the wind. He has what they call "emotional letdown". Does not make sense since he has no emotional letdown. He is either up or down. No in between. He has not started medication yet but soon to be evaluated. He has also been diagnosed with PDD, ADHD, OCD, SEVERE ANXIETY, IQ of 60 and too many others to list. I will get to each problem as they occur.
Angelo has changed the lives in our family and everyone he touches. He has a true love of life. He can see amazement in the beauty of a sunset (he thinks God makes them just for him) and no one is a stranger. He will say "hi "and smile at everyone. He is obsessed with Tornadoes and Trains. He can tell you the tech terms for anything he obsess with but still cannot write his name. He can get on the computer and find his web-sites but still cannot tie his shoes (thank goodness for Velcro) It amazes me on the vocabulary he uses. He uses words that I can hardly pronounce! and he knows what they mean. But, he still needs me to help him in the bathroom and with daily hygiene. It seems with Angelo, we have around 5 kids in one. All a different age group(age 4-9).
Someone once asked me if he could be healed of this genetic disorder would I want God to do this? Yes, most definitely! But, I also know that Angelo has a purpose here on earth. Would I want him to have less anxiety? Yes, but I would never want him to loose the excitement of life. The pure joy I see on his face everyday. The unconditional love he has for everyone. I know that as his Mother, he was given to me as a gift from God. God has in trusted him (and my other children) to me to protect and teach him the right path to follow. Funny thing...I feel that Angelo has taught my husband and I more lessons on life than I can count. He is my "Special Little Angel" here on earth.